Parental decision making in the removal of gastrostomy tubes or buttons in Charge syndrome /
Malta, Rachel, author.
Copyright 2017 by Rachel Malta. In accordance with Title 17 of the United States Code, Copyright Law of the United States of America, this material is copyrighted, and any further reproduction or distribution is prohibited without the permission of the copyright owner.
Medicine -- Decision making; Genetic disorders -- Patients -- Care -- Psychological aspects; Parents of chronically ill children -- Psychology; Tube feeding -- Psychological aspects